Thursday, October 9, 2008
Stimate
Hello...I see that the Hemophilia C article has now been published in the most recent issue of HemAware, the magazine of the National Hemophilia Foundation. One of the more recent treatments my hematologist wants to try is Stimate. He sent me a prescription through the mail, and my pharmacy is ordering it. Do any of you or your children use Stimate? Even if you have Von Willibrands Disease, does it work? If you have a Factor XI deficiency, does it work to control bleeding? I have terrible nose bleeds, so we're hoping this will stop those. Let me know...
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2 comments:
Hi, how did the stimate go? I just came across your blog via the HemAware article - it might be interesting for you to know that LFB, the maker of FXI concentrate in France, make available the product for treatment use via the new FDA expanded access rules.... are you aware of that?
Apparently, this blog has been abandoned by the author. I discovered that Stimate made me very nauseous, after several major surgeries. It was discontinued for me.
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